MAL's MURMURINGS [aka Broad Thoughts From Heterocon]

DIS-CONCENTRATION is my latest posting on 'The Word of Sinna Luvva'

 
After a considerable run of post 10.30 hours removals of my corporeal being from the duvet lair, an earlier start to the day formed part of today's regimen. Whilst I still lay there, in the land of nod, my beloved phoned the surgery to arrange an appointment for me, following several weeks of my erratically under par modes of being.

An appointment was arranged for 10.00 A.M., at which the GP gave me a thorough examination before sending me to the hospital for some blood tests and a chest X-Ray. The remarkable thing is that, in spite of having no pre-arranged appointments, these procedures were carried out and, ma belle chauffeuse had returned me home by around 11.15. I have no hesitation, on this occasion, of granting the NHS top marks for efficiency. The doctor has arranged to 'phone me next Friday morning when he has received the full results of the various tests and X-rays.

At a time when the health service has been receiving a good deal of negative publicity, it's reassuring to experience such immediate attention.

I'm woken with a start; on this occasion the doorbell seems to have gained some decibels. My head spins giddily. I try again to lift myself but my torso's having none of it. A heavy thump; it's obvious whatever was to be delivered has now been duly deposited. Amazing how wide the letter box jaws can extend; my head falls back those elevated few inches onto the pillow. Look at the clock, the digital display reads 10.30. It certainly doesn't seem like twelve hours since I retired to the bedchamber. I have scarcely a memory of my beloved departing for work, even though she never goes out without a kiss and a cuddle but, that will have been three hours ago.

Ma belle is blessed with the gift of sound sleep, as opposed to my fitful variety. It requires a definite effort of will power to remove myself from the duvet realm and, in response my lower limbs refuse to obey me, as if some alloy of lead and jelly holds back my attempt at free movement. The leaden jelly feels sharply bruised alongside their hollow emptiness. My ears ache and pop, my eyelids resist the attempt to keep open but the show must go on.

I manage to put on shirt, pants and slacks before the effort exhausts me; I almost feel sorry for myself as I lay back on the bed.Trouble is, with any chronic illness, it's hard to tell whether this is simply part of my normal out of kilter wellness or am I unwell. Generally, I'm enjoying a pretty good remission from some of the most disabling aspects of M.E. although far from regaining my former levels of comfortable healthiness.

I'm now a little puzzled about why I bothered getting dressed as I cross the landing to the bathroom, put on the wall heater and ready myself for a shower; that's when a fresh bout of nauseous giddiness kicks in as my lower limbs go into a kind of spasm. Steady myself against the sink, switch off the heater and cancel my plans to take a shower. Sans shower I feel grimily burdened but, I realize a general sense of disorientation wouldn't be a good shower companion.

Hopefully the painkillers will soon kick in against the spasmodic discomfort in torso and limbs, apart from that, it's just another normal day and there's a life to be lived. Good morning rainfall, I'm coming down to visit you!

A generalized sense of shatteredness has replaced much of the familiarly painful discomfort of the past few years yet, simultaneously, the tetchiness of my achingly disoriented days has returned with a vengeance. I suppose that, on one level, I feel rather guilty about not doing more with my time; after all, I have periods of a few hours on most days now when I feel totally alert but, even many of my e-mails remain either unread or superficially browsed through and my best intentions remain just that, intentions.

At least when pain was being experienced at excruciating levels I felt that was genuine reason for not getting off my backside and committing myself to some positive action or endeavour, manifest in either literary or painterly output. Currently, I find myself exhausted when I go to bed (at a time I once would have considered early), restless through a goodly portion of the night and, spasmodically sleeping through a goodly part of the morning, once I've discovered a suitably comfortable posture. It's rather strange being neither a night-owl nor an early riser; where once a few hours bed rest ensured an adequate energy resource, many hours of rest don't seem to leave me with much of an energy reserve at all.

Before anyone jumps in with a solution, I must emphasize that whenever I forego my lying-in period a totally mind-numbing, muscle bruising, fatigue overwhelms me before the day is out. Any self-enforced increase of exercise seems to have an intensely negative rebound effect on subsequent days.

Frustration rules!